My sister is 40 years old and has something going on. Can anyone help or point us in the right direction. Here is a quick snap shot she typed up. She is a Speech pathologist graduated Cornell with a perfect GPA. Please anything to help is appreciated. If a doctor here thinks they can help I will make sure she gets to your office ASAP.
First attack June 3- Rolled over in bed and felt like I was falling out of bed but wasn't. For several days, I was VERY dizzy all day and night. In 4 days I was still dizzy, but decided to go back to work. I was not BETTER.. It was very hard to work. But over a period of 2 months, and many Dr appointments it slowly got better. Vertigo at night, dizzy during the day and feeling better as the day went on. Saw primary doctor who thought it might be viral, saw ENT who said Benign Positional vertigo. Saw Audiologist and they determined a mild hearing loss. NEVER really went away because at night I would get woozy but most of the summer was almost normal. I tried steroids, they gave me Meclazine that made me so tired that I couldn't take it. Nothing really helped. My primary doctor put me on antibiotics. The ENT gave me exercises to do at home, I feel that did NOTHING but time helped. I also have to sleep sitting up because lying down at night is miserable.
Second bad attack October 18. Two weeks prior to this I had PAIN in my ears and thought I might have an ear infection, so I saw my primary doctor who said my ears were fine and diagnosed Eustachian tube dysfunction. Oct 15th I had some mild vertigo at work.. the room spun one time. So I knew it was coming. Oct 18th, I rolled over in bed and the whole thing started again- And again the worst of it was the first 4 days. But this time I took the steroid pack and got right back to ENT. Then he talked about Menieres. Gave me no medicine. Scheduled me for an ENG test, and ct scan. I also happened to have an appointment with my primary doctor, and she gave me Valium - 2 mgs which were mildly helpful.
I had the ct scan, and then the ENG and another hearing test. The hearing test was unchanged. The day after the ENG test I was extremely dizzy and did one set of my BPPV exercises, that set the room spinning and then I couldn't move my head off the pillow because one cm move made the room spin. This was the worst day I have ever had. My sister came up and called the ENT and they phoned in a prescription for Transderm Scop, but this was not much relief.(not immediately). I went back to ENT 2 days after the ENG test, walking with a cane because everything was spinning. I had to sleep for a week leaning forward on a pile of pillows. He scheduled an MRI, which I did. I also got stronger Valium. The next visit I had with the ENT he told me that the ENG test came back normal, the Ct scan of my brain was normal, and the MRI of brain and ears was normal. He said I did not fit anything as far as a diagnosis and he had done everything that he could do for me and he referred me to another ENT in Syracuse, which was over a month wait.
So I was living on Transderm scop patch (to which I have many side effects) and I woke up one day and couldn't see anything close up and my pupils were extremely dilated so they sent me to an ophthalmologist. The ophthalmologist said this was a reaction to the socpalamine patch. It also gives me a burning bright red itchy rash, and sometimes my pupils are unequally dilated, and VERY dry mouth. The ENT also put me on a diuretic which also dries you out. So I called the ENT and said how uncomfortable the side effects of the patch were, and the nurse called back and said to take meclazine and benadryl for the itching. They already KNEW that the meclazine wipes me out, and doesn't help me. but they didn't take the time to look at my chart apparently. I also tried a low salt (under 1000mgs) diet for 3 weeks which did nothing.
So I just had my appointment with the ENT in Syracuse, who had requested blood test for 8 different disorders and everything came back normal. He reviewed MRI and Ct scan, ENG test, and all he papers from the referring ENT. I had another hearing test, which came back unchanged. This ENT put me through some balance tests and prescribed vestibular rehabilitation therapy that they have not scheduled yet. He also said that he thinks my vertigo is related to my history of migraines, and that he is not the one to treat me, that I have to go see a neurologist. and now I cant get into him until another month. He also said to try and get off the patch. And he feels that perhaps the hearing loss is NOT related to the vertigo, that perhaps there was a mild hearing loss prior to the vertigo and Not associated to it.
In the meantime, I took the patch off, and the vertigo was HORRIBLE, so I put it back on. I can not live without it. My vertigo is NOT getting any better. When I close my eyes at night the room starts moving. However, I typically can sleep, believe it or not, for a few hours. I sleep at 90 degrees. The vertigo wakes me up at night.. and then at 5am every morning.. I have this HORRIBLE feeling like I am headed down a roller coaster, when your stomach creeps up in your throat. I do NOT sleep with my head to the side. I do NOT move it that way when I sleep, because that causes me to spin. When I get up in the morning, I sit on the side of the bed for 10 minutes. Then I have to move around before I start feeling better and typically I have HORRIBLE balance for about 15 minutes. In about 2 hours of being up I am feeling better- not normal- but good enough to function.
The ENT in Syracuse did NOT diagnose Migraine associated Vertigo. He just suggested it.
The only relief I have is this Patch (and I deal with those side effects) and sometimes a Valium if I get this agitated feeling, where I feel that a vertigo spell may be coming.
I have constant feeling of pressure, pain or itching in my ears. I have constant ringing. Also, I have bouts of louder ringing. This is in BOTH ears.
So thats my life. I hate it. I need someone to help. After so many Dr. appointments and tests, and nobody has done anything to help, or even diagnose what is going on with me.
My husband is in Law enforcement and is currently on assignment away from home for the next several months. We have 2 small children that I am taking care of on my own.
Does anyone out there have any advice
Ianthe
First attack June 3- Rolled over in bed and felt like I was falling out of bed but wasn't. For several days, I was VERY dizzy all day and night. In 4 days I was still dizzy, but decided to go back to work. I was not BETTER.. It was very hard to work. But over a period of 2 months, and many Dr appointments it slowly got better. Vertigo at night, dizzy during the day and feeling better as the day went on. Saw primary doctor who thought it might be viral, saw ENT who said Benign Positional vertigo. Saw Audiologist and they determined a mild hearing loss. NEVER really went away because at night I would get woozy but most of the summer was almost normal. I tried steroids, they gave me Meclazine that made me so tired that I couldn't take it. Nothing really helped. My primary doctor put me on antibiotics. The ENT gave me exercises to do at home, I feel that did NOTHING but time helped. I also have to sleep sitting up because lying down at night is miserable.
Second bad attack October 18. Two weeks prior to this I had PAIN in my ears and thought I might have an ear infection, so I saw my primary doctor who said my ears were fine and diagnosed Eustachian tube dysfunction. Oct 15th I had some mild vertigo at work.. the room spun one time. So I knew it was coming. Oct 18th, I rolled over in bed and the whole thing started again- And again the worst of it was the first 4 days. But this time I took the steroid pack and got right back to ENT. Then he talked about Menieres. Gave me no medicine. Scheduled me for an ENG test, and ct scan. I also happened to have an appointment with my primary doctor, and she gave me Valium - 2 mgs which were mildly helpful.
I had the ct scan, and then the ENG and another hearing test. The hearing test was unchanged. The day after the ENG test I was extremely dizzy and did one set of my BPPV exercises, that set the room spinning and then I couldn't move my head off the pillow because one cm move made the room spin. This was the worst day I have ever had. My sister came up and called the ENT and they phoned in a prescription for Transderm Scop, but this was not much relief.(not immediately). I went back to ENT 2 days after the ENG test, walking with a cane because everything was spinning. I had to sleep for a week leaning forward on a pile of pillows. He scheduled an MRI, which I did. I also got stronger Valium. The next visit I had with the ENT he told me that the ENG test came back normal, the Ct scan of my brain was normal, and the MRI of brain and ears was normal. He said I did not fit anything as far as a diagnosis and he had done everything that he could do for me and he referred me to another ENT in Syracuse, which was over a month wait.
So I was living on Transderm scop patch (to which I have many side effects) and I woke up one day and couldn't see anything close up and my pupils were extremely dilated so they sent me to an ophthalmologist. The ophthalmologist said this was a reaction to the socpalamine patch. It also gives me a burning bright red itchy rash, and sometimes my pupils are unequally dilated, and VERY dry mouth. The ENT also put me on a diuretic which also dries you out. So I called the ENT and said how uncomfortable the side effects of the patch were, and the nurse called back and said to take meclazine and benadryl for the itching. They already KNEW that the meclazine wipes me out, and doesn't help me. but they didn't take the time to look at my chart apparently. I also tried a low salt (under 1000mgs) diet for 3 weeks which did nothing.
So I just had my appointment with the ENT in Syracuse, who had requested blood test for 8 different disorders and everything came back normal. He reviewed MRI and Ct scan, ENG test, and all he papers from the referring ENT. I had another hearing test, which came back unchanged. This ENT put me through some balance tests and prescribed vestibular rehabilitation therapy that they have not scheduled yet. He also said that he thinks my vertigo is related to my history of migraines, and that he is not the one to treat me, that I have to go see a neurologist. and now I cant get into him until another month. He also said to try and get off the patch. And he feels that perhaps the hearing loss is NOT related to the vertigo, that perhaps there was a mild hearing loss prior to the vertigo and Not associated to it.
In the meantime, I took the patch off, and the vertigo was HORRIBLE, so I put it back on. I can not live without it. My vertigo is NOT getting any better. When I close my eyes at night the room starts moving. However, I typically can sleep, believe it or not, for a few hours. I sleep at 90 degrees. The vertigo wakes me up at night.. and then at 5am every morning.. I have this HORRIBLE feeling like I am headed down a roller coaster, when your stomach creeps up in your throat. I do NOT sleep with my head to the side. I do NOT move it that way when I sleep, because that causes me to spin. When I get up in the morning, I sit on the side of the bed for 10 minutes. Then I have to move around before I start feeling better and typically I have HORRIBLE balance for about 15 minutes. In about 2 hours of being up I am feeling better- not normal- but good enough to function.
The ENT in Syracuse did NOT diagnose Migraine associated Vertigo. He just suggested it.
The only relief I have is this Patch (and I deal with those side effects) and sometimes a Valium if I get this agitated feeling, where I feel that a vertigo spell may be coming.
I have constant feeling of pressure, pain or itching in my ears. I have constant ringing. Also, I have bouts of louder ringing. This is in BOTH ears.
So thats my life. I hate it. I need someone to help. After so many Dr. appointments and tests, and nobody has done anything to help, or even diagnose what is going on with me.
My husband is in Law enforcement and is currently on assignment away from home for the next several months. We have 2 small children that I am taking care of on my own.
Does anyone out there have any advice
Ianthe
